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For Carers

“WHY DOESN’T ANYONE ASK ME HOW I AM?”

It is frequently said that there are not just brain-injured individuals but rather brain-injured families, because the whole family is affected. Research into the effects of brain injury on the other family members gives some indication of the extent of their difficulties.

For example:

• Close family members are likely to suffer anxiety and depression over time, following the brain injury
• The family stress is more likely to be caused by the changes in personality, behavioural problems and the loss of self-esteem rather than the physical disabilities that can occur after a brain injury
• Relationships are put under an enormous strain
• Families experience feelings of loss and bereavement
• Children often experience emotional problems
• Feelings of guilt and resentment can be experienced by spouses

Families need attention, education, guidance and support if they are to rebuild their lives. These can be accessed through various parts of our service, for example:

• Attending one of our support groups held across the county will provide the opportunity to talk to others in similar situations and to share information
• Attending one of our regular training seminars will teach you about how the brain works, what the effects of an acquired brain injury can be and how you can manage these
• Speaking to one of our advisors who can provide information, advice and support.  If we cannot help you with your specific problem we will signpost you to an appropriate agency/organisation
• Publications on different aspects of brain injury and strategies that can be used to try and overcome some of the difficulties

Following a brain injury a family member can find that overnight they have become a carer but they don’t see themselves in this ‘role’. However as a ‘carer’ you are likely to have just as many needs as the person that you are looking after. You may also need support in dealing with a range of emotions you may experience. These may be frustration; resentment; guilt; anger; fear; loneliness and depression.

Carers UK is a National Organisation which provides support to carers and they have produced a booklet entitled “New to Caring?” which provides information and advice on all aspects of caring, for example:

• The emotional impact of being a carer
• Money and finance
• Looking after your health
• Getting some practical help
• Employment
• Having a life of your own

Please go to www.carersuk.org to download a copy of this booklet or for further information on carers’ issues. Other sources of support and information can be:

• Friends and family – talk to them and don’t be afraid to ask for help
• Carers group or centre – please see details on our carers support group meetings and other ‘useful organisations’ information page
• Social services – ask for a carer’s assessment or other support which may be available to you.  They may also be able to assist with getting you a break from your caring responsibilities, (See our social services link)
• Your GP – they may be able to refer you to a counselling service
• Stress management courses – these are often run by local colleges

Suggested reading

“Head Injury – A Practical Guide” by Trevor Powell

“The Selfish Pig’s Guide to Caring” by Hugh Marriott